https://www.sbs.com.au/news/my-health-record-opt-out-period-begins-what-you-need...


Australians are being warned about potential privacy issues with the new digital My Health Record system.


Here's what you need to know.
Updated Updated 9 hours ago
By Evan Young


Is the data safe?

Security advocates are urging people to consider opting out, citing potential privacy issues.

"We’re concerned about how private information will be properly secured in the future. This government does not have the best track record when it comes to national databases of private information,” Digital Rights Watch Chair Tim Singleton Norton told SBS News, referring to Centrelink's controversial "robo-debt" recovery program.

Mr Singleton Norton said the government should reconsider its approach to the scheme.

“While My Health Record is a good idea, in theory, we need to make sure the emphasis is based on an individual rights-based approach, rather than what it is now, which is ‘let’s just build up a database now, and that’ll give us a wealth of knowledge and we’ll see how we’ll use it in the future," he said.

“That’s not caring about an individual’s right to control their privacy.”

Already did it seems - I see documents from my doc that say not to be included in the records system - never even knew the question existed, but apparently the docs figure I need to tell them I want it...

Good thinking.

Sir Spot of Borg wrote on Jul 17^th, 2018 at 6:16am:



Big Brother will keep your information safe.

issuevoter wrote on Jul 17^th, 2018 at 7:15am:



The Govt. is saying that 900,000 people can all be trusted. 

Sir Spot of Borg wrote on Jul 17^th, 2018 at 7:29am:



Within a week of going to hospital many years ago
I started getting unsolicited calls on my mobile phone
trying to sell me everything.
I had never had them before.
I can only assume that someone in the hospital sold my mobile number to scammers.

I signed up to eHealth several years ago because a neighbour mentioned it, but mostly to check what it had of MY records ... there was bugger all there. 

My elderly GP can barely use a keyboard, less alone transfer all my stuff to something online and I suspect that his "minders" don't have a clue either. 

yes i will opt out for fear of all my records ending up in India somewhere.

Bobby. wrote on Jul 18^th, 2018 at 7:31am:


They dont make it easy. You should see the amount of ID tey want to opt you out. If you dont drive, havent been overseas, and arent an immigrant good luck with that!

Spot

UnSubRocky wrote on Jul 18^th, 2018 at 3:33pm:


Thats a point. Nobody is allowed to. One time in hospital they left my file near me and went away and when they came back i was reading it. they snatched it from me and explained that it is classified and im not allowed to read it. You can imagine the argument that followed but the short of it is you arent allowed to read your own records.

Spot

UnSubRocky wrote on Jul 18^th, 2018 at 3:51pm:


Heh i think the snatching was because i was actually in there because of a medical "accident".

Spot

Bobby. wrote on Jul 18^th, 2018 at 4:17pm:


900,000 strangers already know that I am schizophrenic.

Bobby. wrote on Jul 18^th, 2018 at 4:33pm:


Yeah Bobby that's the right thing to say

Spot

Bobby. wrote on Jul 18^th, 2018 at 4:33pm:


No. Just one that had a chemical imbalance of the brain. And, at worst, has a disposition to occasionally not show proper discretion on message boards.

I voluntarily tell people that I am schizophrenic. I have no shame admitting it. Sometimes, I use my condition as an explanation for my rare behaviour.

If Mr Lim at the local pharmacy sees that I am schizophrenic, I am sure he would be professional enough not to draw any wild conclusions.

I will give you an example of the schizophrenic delusion I had back in the day. People sometimes mistakenly assume someone to be someone else. Most of the time, we quickly get our facts straight and realise that we were wrong. Whilst I would likely assume that the person I have mistaken is still the other person, until such a point (days, weeks, months later) when I clear, or I have corrected my chemical imbalance of the brain.

Sir Spot of Borg wrote on Jul 19^th, 2018 at 6:30am:



Not good for finding a job.


Latest news.




http://www.abc.net.au/news/science/2018-07-18/my-health-record-opt-out-confusion...


Australians have until October 15, 2018 to tell the Government they do not want a My Health Record — an online summary of their healthcare information.

The project aims to give users greater access to documents about their health and increase communication between doctors.

But some people have tried to opt out due to privacy concerns, only to discover they already have a health record set up.

Almost 6 million Australians currently hold a My Health Record, according to the Australian Digital Health Agency (ADHA).
Your questions about My Health Record answered
An illustration with a hand wearing a fitness tracker.

From privacy to cybersecurity.

Wes Mountain in Melbourne said he tried to opt out of My Health Record on Monday, but the system told him he already had a record.

He is certain he never actively created a My Health Record, but when he logged in, he found several documents relating to prescriptions were already uploaded.

When examining the access log, he found the first action taken on his account was a document added by an external provider — DHS Medicare Repository Services — in late June.

The first time he had ever personally accessed the record was on Monday, according to the access log shown to the ABC.

He plans on contacting the ADHA to try and figure out what happened, and see if his record can be deleted.

The ADHA is required to hold My Heath Record information (although it will be largely inaccessible) for 30 years after your death.

In an emergency, I'd prefer to have the vital information needed about me or my family members available as quickly as possible.

I don't trust any Governmental Bureaucracy or even private firm with my data, but there is a balance between conspiratorial paranoia and helping to protect those you care about.

It's easy to say now while the honeypot is intact, however.

Read about it here:

https://www.myhealthrecord.gov.au/

System crashes

https://www.zdnet.com/article/my-health-record-systems-collapse-under-more-opt-o...

Spot

https://www.zdnet.com/article/healthengine-caught-sharing-medical-data-with-comp...



The Telstra-backed online appointment booking service was sharing medical information with personal injury law firm Slater and Gordon, the ABC has reported.

buzzanddidj wrote on Jul 23^rd, 2018 at 4:30pm:



And that's the pity.
If you opt out then you could be vulnerable if something goes wrong.

Wont be long until all the travel insurance companies have their own doctors paid to look up claimant records when necessary to quash claims for overseas hospitalisation due to some pre existing obscure condition.

buzzanddidj wrote on Jul 23^rd, 2018 at 4:30pm:



when I have been for blood tests  I have been asked   what meds are you taking.....

the chemist knows what meds I am taking....

all on computers that staff have access too?.....

I dont know what the fuss is about.!

Redmond Neck wrote on Jul 24^th, 2018 at 10:22am:



every year I end up on the free meds  and I get a card to use if I go to another chemist...so they can I presume use my account I have with my usual chemist.......if you get a lot of scripts re and not always the same chemist  tell the newby where your account is.. and they will add thatscript to the list....

one year I had 6 months free meds....the year of the bad hip...lolol

Redmond Neck wrote on Jul 24^th, 2018 at 10:37am:



bloody hell!  tell me about it?

Why is the onus on us to opt out? we should be asked if we want to be on it, not asked if we DON'T want to be on it ... and if not enough people say yes, then these vulnerable records and website should not go ahead

Human rights are arse about in Australia. Who are the communists setting these things up and just turning us into numbers for a communist utopia?

The Health system should be about competent, suitably trained intelligent doctors who can diagnose on the spot without wasting valuable time possibly reading the wrong patients record with the same name - it happens and happens often, and if you as a patient is on a machines and out to it, you won't know if someone elses record is being applied to you

A doctor looking up these records is like a pilot of an airliner thumbing through the planes manual when the plane is close to crashing

Read this thread if you really want an insight into things that can go wrong ...

http://www.ozpolitic.com/forum/YaBB.pl?num=1485857667

Of all these concerning issues, there's one issue that really got my dander up. It's only mentioned briefly but it was about doctors taking drugs in their leisure time. The Minster got onto it but all the other issue are very serious as well

You won't be able to trust records and websites until you can fully trust the Healthcare System itself and the Public Service

At the moment, I trust no one and I opted out of the records many months ago, now I shouldn't have to opt out of the website publication of my records because they shouldn't be there ... but I'll look anyway, and if my name and records are there, I'll sue them

cods wrote on Jul 24^th, 2018 at 9:34am:


the fuss is about the fact it isnt secure and just about anyone can access your personal information including your medical information.

Spot

Sir Spot of Borg wrote on Jul 24^th, 2018 at 11:54am:

cods wrote on Jul 24^th, 2018 at 11:50am:


True, but still it would be one less thing to worry about. 

Sir Spot of Borg wrote on Jul 24^th, 2018 at 11:54am:



Correct - 900,000 people will have access to your personal records.

sound too iffy- I'm out

Bobby. wrote on Jul 24^th, 2018 at 4:49pm:


Yeah! Nah!


Im out and my immediate family is out also.
Screw the gov. I don't like mafias.

Tried for the opt out yesterday - went around in circles, then told me I already had an active account so it couldn't be canceled........ but I could ring the government agency to get it done if I wanted...

Who's prepared to bet that regardless of whether or not you opt out, you will still have an 'account' with this body, but you just won't know it.

Whistle blower... whistle blower..... where are you?

https://www.couriermail.com.au/rendezview/as-a-doctor-heres-why-my-health-record...

I'm out. I will wait a week or two for the initial rush to abate a bit.

I don't want the government giving unfettered access to my health data to anyone it chooses.

Big Brother
David Bowie LYRICS


Don't talk of dust and roses
Or should we powder our noses?
Don't live for last year's capers
Give me steel, give me steel, give me pulsars unreal
He'll build a glass asylum
With just a hint of mayhem
He'll build a better whirlpool
We'll be living from sin
Then we can really begin

[Bridge]
Please saviour, saviour, show us
Hear me, I'm graphically yours

[Chorus]
Someone to claim us, someone to follow
Someone to shame us, some brave Apollo
Someone to fool us, someone like you
We want you Big Brother, Big Brother

[Verse 2]
I know you think you're awful square
But you made everyone and you've been every where
Lord I think you’d overdose if you knew what’s going down

[Chorus]
Someone to claim us, someone to follow
Someone to shame us, some brave Apollo
Someone to fool us, someone like you

Bobby. wrote on Jul 26^th, 2018 at 7:36pm:

Possibly but the issue is so it can't be used to deny insurance so the subterfuge will be expected to stick!

Bobby. wrote on Jul 29^th, 2018 at 2:21pm:

Enrolled for it?

What, by being born??

Bobby. wrote on Jul 29^th, 2018 at 3:02pm:

Finally got out. they asked me why i wanted to opt out and i said because i dont want to be in it. they accepted that.

Spot