Eliz52
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Australian Politics
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I've been aware of concerns about breast screening for many years now, the first Cochrane review came out over 10 years ago. I've wondered for years...when are they going to tell Australian women about these concerns? This topic has been hotly debated for many years overseas, but not much has been said here. Robin Bell from Monash Uni was the first to step forward and warn women, and that was only 2 or 3 years ago.
I'd urge all women to head over to the Nordic Cochrane Institute website and read their summary of the evidence for and against breast screening. The NCI is an independent, not for profit, highly regarded medical research group, Peter Gotzsche is the head of the NCI. (I heard him speak at the Evidence Live Conference in Oxford last year) Prof Gotzsche did not have a view on breast screening when he was asked by the Danish Govt to review the evidence for mammography, he was shocked by the findings and felt women should be told...so the summary was produced. It was first released over 10 years ago and has been translated into a lot of different languages.
I don't have breast screening, an informed decision. I think it's a personal decision, but women should at least be provided with all of the evidence and be left to make up their own minds. Forget targets, it should be about the individual and informed consent, and we should change the language used in women's cancer screening, no "must" or "should" or women who "avoid" screening, it's a choice, not a law.
Instead of real information we get celebrity endorsement, scare campaigns and a focus on the govt set target. The information provided to women is not balanced and complete, in my opinion. (to put it politely) I find it quite insulting that they think I'll screen because Jo Hall thinks it's a good idea.
Men got risk information quickly for prostate screening and doctors were reminded to obtain informed consent, women are still waiting for the same ethical and respectful treatment.
The NCI say that about 50% of screen detected breast cancers are over-diagnosed and that any benefit of screening is wiped away by those who die from heart attacks and cancers after treatments.
There is also, an informative lecture on YouTube by Prof Michael Baum, the UK breast cancer surgeon who set up the first UK breast screening clinic. (and resigned when he realized they were not going to give women risk information) He has campaigned tirelessly to pressure the UK Govt to respect informed consent for women and release all of the evidence to women. See: "Breast cancer screening:the inconvenient truth" by Prof Baum There is also, a DVD called "The Promise" (breast screening) it's $6 but worth every cent. I think Australian women need an explanation: why are we starting to hear about this now when its been a major concern for over 10 years now?
Be careful with our cervical screening program too, we have always screened too early and far too often, that provides no additional benefit to women, but greatly increases the risk of a false positives, excess biopsy or over-treatment. We have huge referral rates, the lifetime risk of cc is 0.65%, the lifetime risk of referral under our program is 77% The Finns have had since the 1960s a 7 pap test program, 5 yearly from 30 to 60, they have the lowest rates of cc in the world and refer FAR fewer women for biopsies etc. We "treat" more than 10 times the number of women.
Now the evidence has moved on and the Dutch program is one to watch, they'll scrap population pap testing, a burden for the vast majority of women who can never benefit (but can be harmed) and offer instead 5 HPV primary tests or HPV self testing at ages 30,35,40,50 and 60 and ONLY the roughly 5% who are HPV+ will be offered a 5 yearly pap test. Most women are HPV- and having unnecessary pap testing, biopsies etc. The new Dutch program is likely to save more lives and just as importantly takes most women out of pap testing and harms way. I have never taken part in the Australian program.
We're finally changing our program, but I fear excess will remain, sounds like we'll move to 5 yearly HPV testing (no offer of self testing until you refuse the invasive test for 6 years or buy it through the manufacturer or through your GP) from age 25 to 72 or 74. This is over-screening, and it only takes basic research to find HPV testing is not recommended before age 30, about 40% of those aged under 30 will be HPV+, transient and harmless infections that will clear by age 30, by that age only about 5% are HPV+, these are the only women who should be offered a pap test. Also, it sounds like we'll refer HPV+ women for colposcopy and biopsy when they should simply offer them a pap test. I don't know why we struggle to follow and adopt the evidence and don't seem to respect informed consent for women. I think both programs should be independently assessed by someone like the NCI and be properly monitored going forward to ensure they always put the evidence and informed consent first.
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