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7.30 ABC..Breast Cancer Screening (Read 8722 times)
Emma
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7.30 ABC..Breast Cancer Screening
Feb 18th, 2015 at 8:13pm
 
Tonight I saw something which I think women should be aware of.
I'll state my position first... I basically agree with the findings. I am not a doctor. I am a woman.
I'll explain why I agree a bit further on.

The actual segment on 7.30 was to do with a Professor Goethke  and his findings, and the responses to it. These were reasonably presented,  and included pro and con views.
The findings basically presented the position that there is  significant  'over-servicing of women in Breast Cancer Screening', and that there are negative  possible outcomes to those women, who should be aware of the issue, so as to be properly informed of the steps they take in personal health care. .

Most specifically, but check it out for yourself if you're interested, that the mass Mammography screenings which around 54%of women now undertake regularly in Australia, are , at best ineffective in reducing harm from Breast Cancer, and at worst causes of unnecessary deaths in healthy women. 

That is a very quick summary, and not the full story .. BUT


the reason why I agree is from personal experience.

I have not had a mammogram for about 15 yrs,  and as a woman past her 55th year, some would consider that foolhardy.

I do have my reasons, but, umm given the history and some of the dispositions of some  posters on this Board,  I'll  wait tho to see the tenor of the responses, if any, before posting  further.
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miketrees
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Re: 7.30 ABC..Breast Cancer Screening
Reply #1 - Feb 18th, 2015 at 10:12pm
 
I was sitting with two women when watching that.
One a nurse of 30 plus years, one a student (molecular biology and genetics)

Neither were impressed with Professor Goethke, both thought they would like to see the statistics and check for inaccuracies and bias.
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Emma
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Re: 7.30 ABC..Breast Cancer Screening
Reply #2 - Feb 19th, 2015 at 12:15am
 
That they are both medical professionals would explain their reaction.

I do understand the gut-level instinct of the medical fraternity to deny what would seem to fly in the face of common practice.

I suggest they DO look at the findings..and then make an obviously qualified comment.

Would be appreciated.
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Re: 7.30 ABC..Breast Cancer Screening
Reply #3 - Feb 19th, 2015 at 12:37am
 
perhaps that is a bit much to ask of these colleagues/companions of yours.
Yes,   They may well  be in another field of medicine altogether, and never really looked at this before.

I know I have not heard this opinion expressed before .. in media. Altho it has been my view for some time now.,

but I was very pleased to hear about it on 7.30.ABC tonight.

I suspect only individual women, before this Report, to date, have looked at this matter at all.
It seems too outre..  but I am sure there are other women  who , from their own experiences, made a personal decision.. similar to my own. IF NOT..  ladies!! think about it..   

otherwise

I am simply too freakin smart and a singularly perceptive individual.., Smiley  ..
(if only myself and a European Professor have reached this position.  Smiley )

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Re: 7.30 ABC..Breast Cancer Screening
Reply #4 - Feb 19th, 2015 at 3:04am
 
at age 55 you can easily expect to live for another 30 years.
Good idea.

My mum has stopped them, she is in her 80's

oh yes, and it is 3 am, I am tired nd misread your posing
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miketrees
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Re: 7.30 ABC..Breast Cancer Screening
Reply #5 - Feb 19th, 2015 at 8:25am
 
Perhaps these findings are similar to findings on prostate cancer, no overall benefit.

But there is still going to be benefits for some of those individuals that are caught early.
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Eliz52
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Re: 7.30 ABC..Breast Cancer Screening
Reply #6 - Feb 19th, 2015 at 10:14am
 
I've been aware of concerns about breast screening for many years now, the first Cochrane review came out over 10 years ago. I've wondered for years...when are they going to tell Australian women about these concerns? This topic has been hotly debated for many years overseas, but not much has been said here. Robin Bell from Monash Uni was the first to step forward and warn women, and that was only 2 or 3 years ago.

I'd urge all women to head over to the Nordic Cochrane Institute website and read their summary of the evidence for and against breast screening.
The NCI is an independent, not for profit, highly regarded medical research group, Peter Gotzsche is the head of the NCI. (I heard him speak at the Evidence Live Conference in Oxford last year)
Prof Gotzsche did not have a view on breast screening when he was asked by the Danish Govt to review the evidence for mammography, he was shocked by the findings and felt women should be told...so the summary was produced. It was first released over 10 years ago and has been translated into a lot of different languages.

I don't have breast screening, an informed decision. I think it's a personal decision, but women should at least be provided with all of the evidence and be left to make up their own minds. Forget targets, it should be about the individual and informed consent, and we should change the language used in women's cancer screening, no "must" or "should" or women who "avoid" screening, it's a choice, not a law.

Instead of real information we get celebrity endorsement, scare campaigns and a focus on the govt set target. The information provided to women is not balanced and complete, in my opinion. (to put it politely)
I find it quite insulting that they think I'll screen because Jo Hall thinks it's a good idea.

Men got risk information quickly for prostate screening and doctors were reminded to obtain informed consent, women are still waiting for the same ethical and respectful treatment.

The NCI say that about 50% of screen detected breast cancers are over-diagnosed and that any benefit of screening is wiped away by those who die from heart attacks and cancers after treatments.

There is also, an informative lecture on YouTube by Prof Michael Baum, the UK breast cancer surgeon who set up the first UK breast screening clinic. (and resigned when he realized they were not going to give women risk information) He has campaigned tirelessly to pressure the UK Govt to respect informed consent for women and release all of the evidence to women. See:
"Breast cancer screening:the inconvenient truth" by Prof Baum
There is also, a DVD called "The Promise" (breast screening) it's $6 but worth every cent.
I think Australian women need an explanation: why are we starting to hear about this now when its been a major concern for over 10 years now?

Be careful with our cervical screening program too, we have always screened too early and far too often, that provides no additional benefit to women, but greatly increases the risk of a false positives, excess biopsy or over-treatment.
We have huge referral rates, the lifetime risk of cc is 0.65%, the lifetime risk of referral under our program is 77%
The Finns have had since the 1960s a 7 pap test program, 5 yearly from 30 to 60, they have the lowest rates of cc in the world and refer FAR fewer women for biopsies etc. We "treat" more than 10 times the number of women.

Now the evidence has moved on and the Dutch program is one to watch, they'll scrap population pap testing, a burden for the vast majority of women who can never benefit (but can be harmed) and offer instead 5 HPV primary tests or HPV self testing at ages 30,35,40,50 and 60 and ONLY the roughly 5% who are HPV+ will be offered a 5 yearly pap test. Most women are HPV- and having unnecessary pap testing, biopsies etc.
The new Dutch program is likely to save more lives and just as importantly takes most women out of pap testing and harms way.
I have never taken part in the Australian program.

We're finally changing our program, but I fear excess will  remain, sounds like we'll move to 5 yearly HPV testing (no offer of self testing until you refuse the invasive test for 6 years or buy it through the manufacturer or through your GP) from age 25 to 72 or 74. This is over-screening, and it only takes basic research to find HPV testing is not recommended before age 30, about 40% of those aged under 30 will be HPV+, transient and harmless infections that will clear by age 30, by that age only about 5% are HPV+, these are the only women who should be offered a pap test.
Also, it sounds like we'll refer HPV+ women for colposcopy and biopsy when they should simply offer them a pap test.
I don't know why we struggle to follow and adopt the evidence and don't seem to respect informed consent for women.
I think both programs should be independently assessed by someone like the NCI and be properly monitored going forward to ensure they always put the evidence and informed consent first.
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Lisa Jones
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Re: 7.30 ABC..Breast Cancer Screening
Reply #7 - Feb 19th, 2015 at 10:36am
 
Eliz52 wrote on Feb 19th, 2015 at 10:14am:
I've been aware of concerns about breast screening for many years now, the first Cochrane review came out over 10 years ago. I've wondered for years...when are they going to tell Australian women about these concerns? This topic has been hotly debated for many years overseas, but not much has been said here. Robin Bell from Monash Uni was the first to step forward and warn women, and that was only 2 or 3 years ago.

I'd urge all women to head over to the Nordic Cochrane Institute website and read their summary of the evidence for and against breast screening.
The NCI is an independent, not for profit, highly regarded medical research group, Peter Gotzsche is the head of the NCI. (I heard him speak at the Evidence Live Conference in Oxford last year)
Prof Gotzsche did not have a view on breast screening when he was asked by the Danish Govt to review the evidence for mammography, he was shocked by the findings and felt women should be told...so the summary was produced. It was first released over 10 years ago and has been translated into a lot of different languages.

I don't have breast screening, an informed decision. I think it's a personal decision, but women should at least be provided with all of the evidence and be left to make up their own minds. Forget targets, it should be about the individual and informed consent, and we should change the language used in women's cancer screening, no "must" or "should" or women who "avoid" screening, it's a choice, not a law.

Instead of real information we get celebrity endorsement, scare campaigns and a focus on the govt set target. The information provided to women is not balanced and complete, in my opinion. (to put it politely)
I find it quite insulting that they think I'll screen because Jo Hall thinks it's a good idea.

Men got risk information quickly for prostate screening and doctors were reminded to obtain informed consent, women are still waiting for the same ethical and respectful treatment.

The NCI say that about 50% of screen detected breast cancers are over-diagnosed and that any benefit of screening is wiped away by those who die from heart attacks and cancers after treatments.

There is also, an informative lecture on YouTube by Prof Michael Baum, the UK breast cancer surgeon who set up the first UK breast screening clinic. (and resigned when he realized they were not going to give women risk information) He has campaigned tirelessly to pressure the UK Govt to respect informed consent for women and release all of the evidence to women. See:
"Breast cancer screening:the inconvenient truth" by Prof Baum
There is also, a DVD called "The Promise" (breast screening) it's $6 but worth every cent.
I think Australian women need an explanation: why are we starting to hear about this now when its been a major concern for over 10 years now?

Be careful with our cervical screening program too, we have always screened too early and far too often, that provides no additional benefit to women, but greatly increases the risk of a false positives, excess biopsy or over-treatment.
We have huge referral rates, the lifetime risk of cc is 0.65%, the lifetime risk of referral under our program is 77%
The Finns have had since the 1960s a 7 pap test program, 5 yearly from 30 to 60, they have the lowest rates of cc in the world and refer FAR fewer women for biopsies etc. We "treat" more than 10 times the number of women.

Now the evidence has moved on and the Dutch program is one to watch, they'll scrap population pap testing, a burden for the vast majority of women who can never benefit (but can be harmed) and offer instead 5 HPV primary tests or HPV self testing at ages 30,35,40,50 and 60 and ONLY the roughly 5% who are HPV+ will be offered a 5 yearly pap test. Most women are HPV- and having unnecessary pap testing, biopsies etc.
The new Dutch program is likely to save more lives and just as importantly takes most women out of pap testing and harms way.
I have never taken part in the Australian program.

We're finally changing our program, but I fear excess will  remain, sounds like we'll move to 5 yearly HPV testing (no offer of self testing until you refuse the invasive test for 6 years or buy it through the manufacturer or through your GP) from age 25 to 72 or 74. This is over-screening, and it only takes basic research to find HPV testing is not recommended before age 30, about 40% of those aged under 30 will be HPV+, transient and harmless infections that will clear by age 30, by that age only about 5% are HPV+, these are the only women who should be offered a pap test.
Also, it sounds like we'll refer HPV+ women for colposcopy and biopsy when they should simply offer them a pap test.
I don't know why we struggle to follow and adopt the evidence and don't seem to respect informed consent for women.
I think both programs should be independently assessed by someone like the NCI and be properly monitored going forward to ensure they always put the evidence and informed consent first.


Oooooh, you sound like a nurse. You wouldn't happen to be an Assistant in Nursing by any chance. Wink
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Emma
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Re: 7.30 ABC..Breast Cancer Screening
Reply #8 - Feb 19th, 2015 at 10:18pm
 
Eliz52 wrote on Feb 19th, 2015 at 10:14am:
I've been aware of concerns about breast screening for many years now, the first Cochrane review came out over 10 years ago. I've wondered for years...when are they going to tell Australian women about these concerns? This topic has been hotly debated for many years overseas, but not much has been said here. Robin Bell from Monash Uni was the first to step forward and warn women, and that was only 2 or 3 years ago.

I'd urge all women to head over to the Nordic Cochrane Institute website and read their summary of the evidence for and against breast screening.
The NCI is an independent, not for profit, highly regarded medical research group, Peter Gotzsche is the head of the NCI. (I heard him speak at the Evidence Live Conference in Oxford last year)
Prof Gotzsche did not have a view on breast screening when he was asked by the Danish Govt to review the evidence for mammography, he was shocked by the findings and felt women should be told...so the summary was produced. It was first released over 10 years ago and has been translated into a lot of different languages.

I don't have breast screening, an informed decision. I think it's a personal decision, but women should at least be provided with all of the evidence and be left to make up their own minds. Forget targets, it should be about the individual and informed consent, and we should change the language used in women's cancer screening, no "must" or "should" or women who "avoid" screening, it's a choice, not a law.

Instead of real information we get celebrity endorsement, scare campaigns and a focus on the govt set target. The information provided to women is not balanced and complete, in my opinion. (to put it politely)
I find it quite insulting that they think I'll screen because Jo Hall thinks it's a good idea.

Men got risk information quickly for prostate screening and doctors were reminded to obtain informed consent, women are still waiting for the same ethical and respectful treatment.

The NCI say that about 50% of screen detected breast cancers are over-diagnosed and that any benefit of screening is wiped away by those who die from heart attacks and cancers after treatments.

There is also, an informative lecture on YouTube by Prof Michael Baum, the UK breast cancer surgeon who set up the first UK breast screening clinic. (and resigned when he realized they were not going to give women risk information) He has campaigned tirelessly to pressure the UK Govt to respect informed consent for women and release all of the evidence to women. See:
"Breast cancer screening:the inconvenient truth" by Prof Baum
There is also, a DVD called "The Promise" (breast screening) it's $6 but worth every cent.
I think Australian women need an explanation: why are we starting to hear about this now when its been a major concern for over 10 years now?

Be careful with our cervical screening program too, we have always screened too early and far too often, that provides no additional benefit to women, but greatly increases the risk of a false positives, excess biopsy or over-treatment.
We have huge referral rates, the lifetime risk of cc is 0.65%, the lifetime risk of referral under our program is 77%
The Finns have had since the 1960s a 7 pap test program, 5 yearly from 30 to 60, they have the lowest rates of cc in the world and refer FAR fewer women for biopsies etc. We "treat" more than 10 times the number of women.

Now the evidence has moved on and the Dutch program is one to watch, they'll scrap population pap testing, a burden for the vast majority of women who can never benefit (but can be harmed) and offer instead 5 HPV primary tests or HPV self testing at ages 30,35,40,50 and 60 and ONLY the roughly 5% who are HPV+ will be offered a 5 yearly pap test. Most women are HPV- and having unnecessary pap testing, biopsies etc.
The new Dutch program is likely to save more lives and just as importantly takes most women out of pap testing and harms way.
I have never taken part in the Australian program.

We're finally changing our program, but I fear excess will  remain, sounds like we'll move to 5 yearly HPV testing (no offer of self testing until you refuse the invasive test for 6 years or buy it through the manufacturer or through your GP) from age 25 to 72 or 74. This is over-screening, and it only takes basic research to find HPV testing is not recommended before age 30, about 40% of those aged under 30 will be HPV+, transient and harmless infections that will clear by age 30, by that age only about 5% are HPV+, these are the only women who should be offered a pap test.
Also, it sounds like we'll refer HPV+ women for colposcopy and biopsy when they should simply offer them a pap test.
I don't know why we struggle to follow and adopt the evidence and don't seem to respect informed consent for women.
I think both programs should be independently assessed by someone like the NCI and be properly monitored going forward to ensure they always put the evidence and informed consent first.



Thank you Eliz52 for your response.
I appreciate a reasoned and informed reply. You have added to my information.
  I will now consider the possible over-servicing and treatment for CC, 'cos that is the only program I have participated in. They have been all negative and I do wonder at the benefit.. At 55+ I doubt they have any benefit.. 
Thank you
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Emma
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Re: 7.30 ABC..Breast Cancer Screening
Reply #9 - Feb 19th, 2015 at 10:59pm
 
I find that the doctor I see has no problem with my unwillingness to have further mammograms.  She is a clever lady.

I will  offer you my reasons.

No history of breast cancer in my maternal family..

BUT.. my grandmother had big problems with cyst-like lumps in her breasts,  which could become inflammed and needed to be treated by applications of hot compressions, to help dissipate the lump(s). ( anecdotal From My mother) )

they did dissipate.. it was considered the hormonal cycle triggered the uncomfortable but essentially harmless condition.  My grandmother died aged 92,,  no Cancer present.

SO..

I myself have been aware of lumps for most of my adult life,  but was unaware of my grandmother's issues, until after 2 totally unnecessary medical procedures.

Both found nothing but fatty tissue in the lumps.. and no suspect cells.
But..

OK I had a breast biopsy aged 26,    ( I woke up on the table.. they were still trying to close up 'cos they'd hit a blood vessel!! ) ,  and in his rush the surgeon left me with huge scarring under my nipple. Nothing found.
The scar is still visible today.

Then, about another 10 yrs on, another Dr was concerned at the lumps they felt. Mammograms showed some sort of mass.. atypicable.
I underwent a Needle biopsy,  same breast, with 'the' Breast Dr.. very well known..  no anaesthetic..
just an f'n big needle stuck into my breast,  EEEK, and ... nothing.. just fatty tissue came out.  Oh well thats good he said.

I did have a couple of mammograms after that..  then decided.. no way.
If I don't get anything show up .. that is good, but I still have my breast(s) irradiated for nothing.. and if something DOES show up, I'm faced with more concern and encouragement to have it checked. !! To find fatty tissue. !

Frankly I'll take my chances with good food, and no genetic history. 

.


   

.

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Re: 7.30 ABC..Breast Cancer Screening
Reply #10 - Feb 20th, 2015 at 6:58am
 
Emma wrote on Feb 18th, 2015 at 8:13pm:
Tonight I saw something which I think women should be aware of.
I'll state my position first... I basically agree with the findings. I am not a doctor. I am a woman.
I'll explain why I agree a bit further on.

The actual segment on 7.30 was to do with a Professor Goethke  and his findings, and the responses to it. These were reasonably presented,  and included pro and con views.
The findings basically presented the position that there is  significant  'over-servicing of women in Breast Cancer Screening', and that there are negative  possible outcomes to those women, who should be aware of the issue, so as to be properly informed of the steps they take in personal health care. .

Most specifically, but check it out for yourself if you're interested, that the mass Mammography screenings which around 54%of women now undertake regularly in Australia, are , at best ineffective in reducing harm from Breast Cancer, and at worst causes of unnecessary deaths in healthy women. 

That is a very quick summary, and not the full story .. BUT


the reason why I agree is from personal experience.

I have not had a mammogram for about 15 yrs,  and as a woman past her 55th year, some would consider that foolhardy.

I do have my reasons, but, umm given the history and some of the dispositions of some  posters on this Board,  I'll  wait tho to see the tenor of the responses, if any, before posting  further.


I think there might be a little over servicing also, but believe it's set up that way to encourage more women to have checkups. The conscientious women who do get a screening every couple of years probably get over serviced to make up the numbers. The problem is if they cut back on it, it's quite possible that the incidence of cancer will increase. My mother had breast cancer and that's why I'm fairly diligent about regular screening and appreciate the easy availability of it.
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Re: 7.30 ABC..Breast Cancer Screening
Reply #11 - Feb 22nd, 2015 at 2:38am
 
Mantra-you say ....

The conscientious women who do get a screening every couple of years probably get over serviced to make up the numbers.   

The problem is if they cut back on it, it's quite possible that the incidence of cancer will increase.


Mantra .. I wonder, do you see the sentence above.? 

Sorry I don't mean to be mean BUT

high-lighted in bold above.. 

..it makes no sense..  why on earth would the incidence of a cancer INCREASE because screening was reduced.??

I don't think you are really THINKING about this.. you are comfortable .. your choice. 

Just.. one of many things to consider in life.



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Re: 7.30 ABC..Breast Cancer Screening
Reply #12 - Feb 22nd, 2015 at 4:08am
 
Emma wrote on Feb 22nd, 2015 at 2:38am:
Mantra-you say ....

The conscientious women who do get a screening every couple of years probably get over serviced to make up the numbers.   

The problem is if they cut back on it, it's quite possible that the incidence of cancer will increase.


Mantra .. I wonder, do you see the sentence above.? 

Sorry I don't mean to be mean BUT

high-lighted in bold above.. 

..it makes no sense..  why on earth would the incidence of a cancer INCREASE because screening was reduced.??

I don't think you are really THINKING about this.. you are comfortable .. your choice. 

Just.. one of many things to consider in life.


Perhaps I should have said deaths will increase if the availability of services are reduced because it won't be so easily accessible to women.

Mammograms and ultrasounds can pick up small amounts of fibrous tissue that females don't know they have. Often this will lead to a biopsy where they can pick up a change in cells.

If they start reducing services - then there will be longer waits for a mammogram.

Obviously having regular mammograms is a choice, but not having one for 15 years is foolish.
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Re: 7.30 ABC..Breast Cancer Screening
Reply #13 - Feb 23rd, 2015 at 1:30am
 
mantra wrote on Feb 22nd, 2015 at 4:08am:
Perhaps I should have said deaths will increase if the availability of services are reduced because it won't be so easily accessible to women.



Well, at least your reply removes the causality you were suggesting.

I still think you are making assumptions based on current policy, and not much else.

I would suggest  that you have no basis on which to claim deaths will increase if only women with real family history to concern them are screened.

A sweeping statement there Mantra.   I see no reason why all women should be expected to undergo these screens, else others think they're foolish.

You are welcome to your opinion.

Some parallel may be drawn with male prostate cancer screening. 

I know these test are also most capable of providing positive results,  which turn out to be non-existent or non-life threatening. At least, I think, men don't get programs designed to funnel them into this process regardless.

My ex was diagnosed as having major prostate cancer , needing urgent surgical intervention.  This after years of discomfort, and invasive tests.  When he was on 'the table'.. they found NOTHING.  But all the dramas and stress certainly didn't help him.

I guess I am trying to say  Blanket screening is ineffective, expensive, and unnecessary.



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Re: 7.30 ABC..Breast Cancer Screening
Reply #14 - Feb 23rd, 2015 at 8:32am
 
Emma wrote on Feb 23rd, 2015 at 1:30am:
Well, at least your reply removes the causality you were suggesting.

I still think you are making assumptions based on current policy, and not much else.

I would suggest  that you have no basis on which to claim deaths will increase if only women with real family history to concern them are screened.


I go by advice from the experts Emma. If you choose never to be screened - then that's your decision. Even those without a family history aren't immune.

Quote:
A sweeping statement there Mantra.   I see no reason why all women should be expected to undergo these screens, else others think they're foolish.


Wallow in ignorance - that's your prerogative. It is not compulsory obviously - just recommended.

Quote:
Some parallel may be drawn with male prostate cancer screening. 

I know these test are also most capable of providing positive results,  which turn out to be non-existent or non-life threatening. At least, I think, men don't get programs designed to funnel them into this process regardless.


Again - ignore the recommendation of experts. You seem to believe your opinion is the only one which matters and that's fine, but don't infer women are stupid because they choose to have regular screening.

Quote:
My ex was diagnosed as having major prostate cancer , needing urgent surgical intervention.  This after years of discomfort, and invasive tests.  When he was on 'the table'.. they found NOTHING.  But all the dramas and stress certainly didn't help him.

That's one example, but you can't compare breast cancer and prostate cancer.

I guess I am trying to say  Blanket screening is ineffective, expensive, and unnecessary.


Only because you don't bother with it. Millions of women do believe it is effective and necessary for peace of mind and early intervention.

You are in a susceptible age group and there are other contributing factors such as not having children or breast feeding - so the risks are there.

Quote:
You can have breast cancer for years before you or your doctor notice that something is wrong – by which time it could be well-developed. A breast screen (or mammogram) can find cancer early, when it’s small and easier to treat. A breast screen won’t stop you from getting breast cancer, but it can give you a better chance of successful treatment.

Who should attend breast cancer screening?

Women aged 50 and older are encouraged to have a mammogram every two years to screen for breast cancer. If you want to stop screening mammograms after the age of 75, discuss it with your doctor.

Read more at http://www.cancercouncil.com.au/964/cancer-information/cancer-risk-and-preventio...

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